Celine Dion‘s sister Claudette Dion shared a new update on the singer’ s health and wellness amidst her fight with Stiff-Person Syndrome.
In a current meeting with 7 Jours (equated from French by The Hollywood Reporter), Claudette stated the 55-year-old“is working hard [to battle through her disorder], but she doesn’t have control of her muscles.”
Claudette included,“What pains me is that she’s always been disciplined. She’s always worked hard. Mom always said to her: ‘You will do well, you will do things as they should be done.’ There’s no doubt that in our dreams and in hers, the idea is to come back to the stage. In which state? I don’t know. The vocal cords are muscles, and the heart is also a muscle.”
She additionally regreted that there’s insufficient clinical development yet to deal with the problem:“That’s what is so upsetting to me. Since these cases are one in a million, scientists have not done that much research since it doesn’t affect that many people.”
Previously this year, Claudette informed Hey there! Canada that the Dion family members is “crossing our fingers that researchers will find a remedy for this awful illness.”
Claudette additionally clarified the signs that include Stiff-Person Syndrome, describing, “You know how people often jump up in the night because of a cramp in the leg or the calf? It’s a bit like that, but in all muscles. There’s little we can do to support her, to alleviate her pain.”
In December 2022, Celine exposed she had actually been identified with the unusual neurological condition. “Recently I have been diagnosed with a very rare neurological disorder called Stiff-Person Syndrome, which affects something like one in a million people,” she educated followers in an Instagram video clip. “While we’re still learning about this rare condition, we now know this is what’s been causing all of the spasms that I’ve been having.”
She described some of the obstacles that featured the condition, keeping in mind that the convulsions “affect every aspect of [her] daily life,” by creating troubles while strolling and not enabling her to utilize her singing cables to “sing the way [she’s] used to.”